On Monday April 6th I was given two different kinds of chemotherapy, Oxaliplatin by intravenous IV and Capecitabine as a two-week set of pills. I was also given a suite of supporting drugs (anti-nausea, etc.). I reacted badly to something, so after one week my doctor had me stop. Meanwhile, I still had the second week of chemo pills to take. So after a week of recuperation, I’m going to take my second week of chemo pills starting on Monday.
I’m pretty sure that my bad reaction was due to a steroid (Dexamethasone), that was given as part of the IV infusion. The purpose of the steroid was to keep me from having an allergic reaction to the Oxaliplatin.
Meanwhile, I expect to do ok with just the Capecitabine pills. And by “ok” I mean I think I will barely somehow manage to get through it. It won’t be fun. The Capecitabine makes me extremely nauseous. And I don’t think I react to the anti-nausea meds very well. So I fully expect to be puking all week next week.
But at least, with only one kind of chemo med, it should go better than the first week when I was on both kinds of chemo at once. That was a disaster.
We’re going to try to sell one of the rentals. My agent did a great job finding someone to tidy the landscaping (it was a weedy mess). She also did some staging with a few cheerful items. It looks great!
She hired a good photographer, and in addition to excellent still photographs, they created a 3D self-tour. This works the same as walking around in google street view, except you can walk around inside the house.
When I first tried it on my computer, I kept getting my nose stuck in a corner and couldn’t get out. Help, I’m stuck in virtual house tour! With my face to the wall like a dunce! I finally figured out how to make it work. It’s easier on a smart phone because you can just move around on the screen with your finger.
I finally had a chance to talk with Emily again about how she’s doing on the front lines in the emergency room in Boston. I was surprised to hear that her hours are being cut! What? We’re in middle of a pandemic! Don’t we need our doctors right now?
Apparently her hospital is going broke. No one is doing any “elective surgery” which is where most of the hospital’s income comes from. No income, no money for salaries.
It sounds crazy to me. But then this morning, a local newsletter I get via email said the same thing about New Mexico.
“Christus St. Vincent Regional Medical Center yesterday placed 300 employees on temporary leave for up to 90 days, with CEO Lilian Montoya citing close to a 35% decline in patients and a $10 million-per-month drop in revenue since the state implemented stay-at-home orders and banned doctors from performing non-essential services. Lovelace Health System also confirmed to the Albuquerque Journal yesterday it is making “difficult workforce decisions” that will affect 15% of its staff, approximately 630 people. Two hospitals in Las Cruces also say they are cutting staff.”
With four rentals, we are basically running a small business, with income and expenses, profit and loss. We don’t actually make very much with the rentals, although that’s partially due to less-than-ideal management (we’re our own management, lol). Our two big mistakes are buying and selling too frequently, and investing in upgrades. We refuse to let the houses fall into disrepair like so many other landlords do. But there goes our profit.
We barely make money even in a good year, and now, like nearly every other small business on the planet, we are being hit hard by coronavirus knock-on effects. Two of our four tenants have given notice, and a third has needed a temporary rent reduction.
Typically we wouldn’t have any trouble getting new tenants in, but we are worried because so many people in the rental market have rapidly changing situations with their income. Just because they might be employed today, does not mean they will be employed tomorrow.
Many cities (including Santa Fe) are no longer allowing landlords to evict tenants for non-payment if they are impacted by the coronavirus (and who isn’t?). They can stay rent-free, meanwhile, our expenses don’t go away. This makes sense for the renters and for our country as a whole; we don’t want everyone losing their homes. Problem is, John and I aren’t a big real estate holding company with funds sloshing around to support a bunch of families rent-free, we’re just mom and pop on a single income.
So, like most of the rest of the small businesses in the world right now, we’re going to try to cut back to reduce our risk and exposure. We’re going to try to sell the two rentals that are coming empty. It may be too late – the housing market is freezing up. Almost no one is buying or selling right now. Also I’m hearing that it’s taking much longer to close than normal.
Up until very recently, the market has been strong here. Prices are high and many houses have been going under contract within a day, or even getting multiple offers. But now everything is grinding to an abrupt halt. There’s currently very little on the market, so that’s good for sellers. But buyers are getting cold feet. What’s next? Will the people who are losing their jobs be forced to sell? Will the market glut and prices fall?
The first house we’re going to put on the market is one of the three in Albuquerque. That tenant is out, it’s been cleaned, and the yard guy is working out there this week. The marketing photos are scheduled for tomorrow, and we should have it listed by this weekend.
The second house we’re going to put on the market is the one in Santa Fe. Those tenants don’t need to be out until the end of the month, and realistically, sometimes tenants run a bit late getting out. So I expect it will be at least until mid-May before we can get that house on the market. Who knows what the market will be doing by then!
Note that I said, “We’re going to put on the market” not, “We’re going to sell.” They may or may not sell. We do not want to take a big loss if prices start to fall, and we don’t want them just sitting empty on the market for very long if it turns out there are no buyers right now. If we can’t sell them for a fair price quickly, we’ll take our chances and try to get good tenants in.
Thank you for the emails, calls and texts. Sorry I haven’t replied to anyone in a week. I still appreciate you reaching out.
It’s been a rough week. I started chemo a week ago on Monday. I’ve had a lot of pain and nausea, as well as a variety of other difficult symptoms, including depression. I’ve been mostly laying in bed, crying and puking for a week.
I had a follow-up visit with my doctor this morning. She’s concerned about how poorly I’m tolerating the treatments and has decided to take me off the daily pills for two weeks (and the side effects of the IV drug I got a week ago Monday are starting to wear off). So I’ll have two weeks off and we’ll re-evaluate.
On Sunday I wrote a draft blog post called “Starting Chemo Tomorrow” but then I forgot to publish it. So now the update is: I started chemo yesterday.
Last week we had a video chat with my new doctor. Then yesterday I went into the cancer center to have blood work done, have a physical, and get my first IV chemo treatment. This is the first time I’ve had a doctor do a physical exam and look at my incisions since I was released from the hospital over a month ago (actually my sister, who is a doctor, kept a good eye on me when I was still living with her in Boston) but this was my first official in-person physical exam. Everything seems to be healing up fine from the surgery, it’s just really slow.
In addition to the physical exam, I had blood work done. The blood work looked really good – my white blood cell count was higher than it has been in months and is well into the normal range now. The chemo is fairly likely to temporarily lower my white blood cell count as a side effect of killing any remaining cancer cells, so my white blood cell count will be checked again next week.
I got my first IV dose of chemo, which was difficult. I have issues with my veins so I didn’t tolerate the IV process itself at all well, and will need to talk with my doctor more about that before next time.
I also was given chemo pills to take daily for the next two weeks. That’s a second type of drug, different than the one given by IV. I’m taking two different kinds of chemo, plus in the IV I also got a steroid and and a 48-hour anti-nausea drug (and I have pills for when that wears off). After two weeks of taking the pill form of chemo, I’ll get a week off, then will do the whole thing over again 3 times, for a total of 4 rounds over a 12 week period.
I also have a CT scan scheduled for Wednesday, which will be the baseline, and we’ll use it to watch for any changes during and after the chemo treatment.
My appointment lasted from 9 AM to about 2 PM and all went fine except the IV was a nightmare. The IV part of the appointment took about 3 hours total, including a long time in the waiting room as well as initial struggles to get the IV inserted, and some problems with it even after the drip started. The drip itself lasted about 1 1/2 to 2 hours, most of which was at least somewhat painful and some of which was very painful (that’s not typical, like I mentioned, I’ve had IV issues before and it has to do with my veins). Even getting the IV back out was super painful, and my arm is still very sore and bruised today.
I overheard a nurse grumping that I should have been given a port. But they don’t usually do an intravenous port for someone who only needs an IV four times. Ports are usually for people who have 6 months or more of treatment, or have to get drugs intravenously over a period of several days at home. And right now, with the coronavirus, it’s not really a good idea to do anything more invasive than necessary.
Speaking of the virus, the cancer center is no longer allowing anyone to accompany the patients into the building. So it was doubly hard to not have John there. We called each other on our cell phones, and we left the line open for the entire 5 hours so he could hear what was going on and we could talk when we wanted. Luckily I was able to plug my phone in during the IV process, because I have an old phone and not that much battery!
I felt bad for John having to hear me moan and cry during the issues with the IV line, without being able to be there. He has really been through a lot supporting me with this. I tried to be as stoic and quiet as I could because it was an open room with probably about 30 other patients getting their IV’s, with nothing to do except listen to me cry, and I don’t like to be the center of attention and making everyone else miserable. But there were at least two different times when I was nearly out of my mind with pain. It’s all bruised now and I had to take tylenol to even be willing to move my arm when I got home. This morning it’s still sore, but at least I can type!
I never blogged any details about the days in the hospital after my surgery, because I don’t like to think about it. But I did have IV issues during that time as well, so yesterday’s issues weren’t just due to a random bad insertion or anything.
The cancer center was doing their best to protect us from coronavirus exposure. We were stopped at the door, anyone who was not a patient was turned away. Patients had their temperature taken, and if it was normal, allowed to enter the building.
The receptionists wore hand-sewn masks, likely donated by the local community. The nurses and doctors only had standard paper masks (not N95). There was a small bottle of hand sanitizer sitting out in the area where we were getting our IV treatments, but there was none anywhere else, and I overheard the nurses say that the hand sanitizer is expected to run out in 4 days and they were not expecting a new shipment for 4-6 weeks. Someone was going around wiping down the waiting room chairs using what appeared to be hand-mixed disinfectant in an unmarked spray bottle, which she sprayed onto a cloth.
Everyone was mostly seated 6 feet apart. Many of the patients came in wearing various types of handmade masks, dust masks, or cloth tied around their face. Many also wore latex gloves. I wore gloves and a buff (like an extra-wide headband) around my mouth and nose, but it kept slipping down. John wears a dust mask when he goes out, but the dust mask doesn’t fit me well, with large gaps around it, and I don’t think it does much good.
This morning my friends said they would make me a cloth mask today, which I really appreciate. John also said he would make me one, but he has so many other things he’s doing for me, plus trying to keep up with his job. I know how to sew, but close-up work like sewing is currently causing nausea. (Luckily I can still type on the computer and read my kindle. Yay for large font!)
I don’t think New Mexicans in general are being very good about wearing masks. I actually don’t know what they’re doing in the grocery stores and other indoor places because the cancer center is the only place I’ve gone since arriving home more than two weeks ago. And I’m sure that cancer patients are being a lot more careful than the average person. I do know that most people I see taking walks in the neighborhood aren’t wearing masks. They are relying on social distancing.
A friend told me that he got dirty looks when he wore a mask to a pharmacy, and I just couldn’t even understand that. Why would people resent other people trying to be helpful? Masks are most effective for keeping asymptomatic people from unknowingly infecting others. So it seems to me that wearing a mask would be one of the most considerate things you could do for your neighbors. We should all be thanking those who are going to the trouble of wearing a mask.
Our neighborhood recently had an outdoor gathering. We all got a notice on our doorstep inviting us to come out at a set time and wave from a distance. That’s me in the center of the picture.
At first people really kept their distance, but then they started drifting in as they were conversing. No one was wearing a mask. We weren’t either; this was before we heard we should be wearing masks outside as well as indoors in public. Now that I’ve started chemo I’m going to wear a mask on my walks, and I’ll also probably quit attending the weekly neighborhood greeting altogether.
Laura, you’ll like this one. Good job staying home, Santa Clara County!
Sorry I’m failing to post the link for that picture, but if you go to the bottom of this website, https://healthweather.us/ , there will be a link for “‘A Tale of Two Counties – Atypical Illness Trends for Santa Clara and Miami-Dade County’ Posted March 20, 2020”
While I’m posting stuff from the internet, here’s a comic:
It’s a cold, gray, dreary day and John and I are in week two of quarantine. So I’ve come up with a couple of grocery games to pass the time.
The first game is “Take Stock of the Pantry”. With the procurement of groceries becoming hit-and-miss, it’s time to make good use of what’s already in the pantry. How old is the stuff lurking in there, anyway?
Here’s my entry for the oldest pantry item:
Does that say 2009? Yep, I’m thinking so. That’s over a decade ago! This baby went from Albuquerque to California and back. It’s probably been moved half a dozen times at least.
Narcisco to El Padro to Hampton, then possibly a week in Homesteads before going on to Calle la Paz, then to either Vista del Prado or back to Homesteads, then finally to Lawrence. I know that sentence made no sense – I was counting moves. This fine can of salmon resided in 6-7 houses.
We don’t eat canned salmon (obviously). I don’t remember buying it all those years ago. I was probably trying to buy tuna and goofed. At any rate, it was a long, long time ago. I can guarantee there’s no COVID-19 clinging to that can of salmon.
The second fun game I’ve been playing all week is “Online Grocery Checkout”. There are a variety of home delivery options available for grocery delivery, but the systems are becoming overwhelmed by the all the new customers. The delivery workers are overworked and underpaid and are talking about striking.
I’m trying to tip well, and I’ve also got gift cards taped to my door, but as a whole I think delivery services are being undervalued by consumers as well as by the companies in the delivery service.
I keep two different online grocery carts full – Whole Foods delivered by Amazon, and Sprouts delivered by Instacart. I periodically attempt to checkout. Invariably, there are no delivery time slots available to select. Except every once in a while there suddenly is a delivery slot available! Score! I quickly check out, not even remembering what might be in my cart. Hopefully not canned salmon.
Then groceries magically show up at my door; bags full of items that closely resemble the items I had at one point put in my online cart. I think the shoppers are doing a darn good job. It’s really hard to buy items that you aren’t familiar with. It takes forever trying to puzzle it out.
For example, do you have any idea how many different kinds of Rice Dream Rice Milk there are? There’s vanilla classic, and vanilla enriched, and original classic organic, and original enriched organic, and there’s original enriched organic unsweetened, and original enriched organic sprouted rice unsweetened, all in different sizes…there’s probably couple of dozen different variations at least, no seriously, it’s crazy. These are just a few of the options.
And that’s just rice milk. They also make coconut milk and almond milk with the same packaging, and presumably also all with various classic or enriched and/or unsweetened and/or organic options. It’s endless!
And someone making not nearly enough money is having to stand there in the virus-infested grocery store and figure it all out. And text their customer asking permission to make substitutions. And wait for a reply and then go back to that section after they get a reply. Or they don’t get a reply and they just have to make their best guess. Then they’ll have an irate customer, and then I don’t know what happens but I’m sure it’s not good.
I heard (I could be wrong, but I heard) that they are only making about $7-something per order, and it can take an hour and a half to shop and deliver. That is not enough money for all that work. So tip your help generously! And be understanding if it’s not as good as if you had gone to the store yourself.
Of course someone else’s shopping job won’t be perfect. But at least they aren’t bringing you canned salmon destined to be moved back and forth across the country for the next decade!
You know how some people shave their head to show solidarity with their friend or family member who lost their hair from chemo? Well, let me tell you what happened to my poor, shaved poodles.
Poodles don’t have regular dog fur that sheds all the time and stays short. Instead, they have something more like sheep’s wool that doesn’t shed. It keeps right on growing…and growing…so they need regular clipping; about every 6 weeks.
My poodles are typically beautiful after a good grooming:
When we went to Boston for my surgery, we left the poodles with my mother-in-law. After a few weeks I realized the dogs were going to need groomed. I hired a mobile groomer so my mother-in-law didn’t have to take them into a shop. This was right before all the shops were closing due to the virus. The mobile groomer was insanely expensive, more than I’ve ever paid, but I didn’t have a lot of choices and was just grateful to find someone willing to go out there and groom my dogs.
I didn’t even know there was an issue until John got down there to pick them up a couple of days later. He called me and warned me I would just have to laugh about it, otherwise I’d cry. He said he has never seen such a bad grooming job in his life.
Rosie looks like a miniature lab!
Yes, that’s Rosie! I guess she’s still sort of cute, but it’s shocking! She usually looks like this (except not usually with an ocean in the background):
It’s funny that the groomer didn’t even do them the same. She completely shaved Rosie, but then she left some hair on Kai’s head and ears – but it’s cropped way too short. The poor guy looks pretty funny.
You would have thought that if the groomer imagined that she knew what she was doing, she would have at least done them the same. Maybe after completely shaving Rosie she decided she goofed (yeah maybe?) and then tried to google-image what a poodle cut is supposed to look like before starting in on Kai. Colossal fail.
Our third dog, Kira, got lucky and escaped the butcher-groomer entirely. She’s the most timid of our three dogs, so I had told the groomer to do her last. When it got to be her turn, the groomer wouldn’t do her because it turns out she has a wound on her side. We don’t know how she got hurt.
After we got her home to Albuquerque, we cut the matted hair around the abscess, cleaned it and applied ointment. Now she has a cone collar on so she will leave it alone. We have some antibiotics and are hoping we can successfully treat her abscess at home and not have to take her to the vet.
The dogs are like the goldilocks story. One is completely shaved, one half shaved, and one unshaved and in a cone. None of them are “just right”. No matter, we don’t mind, who is going to see us anyway? We’re all in quarantine. It’s backyard ball time!
I kept myself entertained the other day by sifting through my 41,372 pictures looking for good dog pictures from better days. So here’s a few more, enjoy…
I’ve been getting some questions along the line of, “Why chemo, didn’t they get it all?” It’s a bit more complicated than that. Yes, they were able to remove the whole tumor. But surgery disrupts everything in the region and there’s going to be dislodged cancer cells spewing around a bit afterwards. Also the cancer had (just barely) started to spread. It’s not like it’s taken hold all through my body or anything. But it had creeped into one nearby lymph node and had started to set up shop there, which is concerning.
They removed that lymph node during surgery (and a bunch of others just to be on the safe side). I currently have no known tumors or remaining infected lymph nodes, but there’s definitely random cancer cells wandering around and we need them to not get settled down and comfortable. My chemo is basically a mop-up exercise.
After my recent post where I said, “If someone would just send me chemo pills, I would be set!”, a friend of mine gently suggested that chemo is not going to be as easy as someone dropping some pills in the mail. Well, ok, yes, I guess I figured that.
First I need to wait to get out of quarantine (because I traveled home from Boston I’m still in quarantine. The cancer center won’t let me come for an appointment). Then after quarantine I’ll need to do a bunch of blood work and possibly some other tests. And there are specialists to consult. It will all take time.
All this past week I spent waiting to hear back from the doctor. First I was told the doctor would call on Monday, then Tuesday, then Thursday, then Friday…I won’t bore you with the exact details, but it involved repeated calling to various doctors offices, emailing my medical records to anyone willing to give me an email, and being glued to my phone, waiting. It’s surprisingly stressful waiting for a doctor to call.
All week long I’d hand my phone off to John if I needed to run to the restroom or something, so he could answer it for me. And every time I absentmindedly set my phone down somewhere I got frantic. “Were’s my phone?! Where’s my phone!?” We waited and waited and called to check back, and resent records over and over, and checked back again, and finally, on Friday evening, a doctor called!
I don’t have an actual appointment yet, but at least now I have a doctor with a plan. I’m expecting to start chemo in just over a week from now. I’ll be put on a combination of pills and IV injections. I’ll start the pills on the same day as my first IV. Then I do the pills every day for two weeks. Then I take a week off. Then I do another IV and pills for two weeks. So an IV every three weeks, and daily pills for two out of three weeks. This goes on for 12 weeks. That’s only 3 months, which is much shorter than the 6 months we were originally told to expect. So that’s excellent!
During treatment I’ll get my blood drawn frequently so they can check for various things like my white blood cell count. If I seem to be getting too immunocompromised, they can give me things for that. Also she told me that the drugs available for nausea are a lot better than in the past, so I’m hoping I won’t be too miserable.
I will also need to do another MRI, which I think should go fine. I learned a lot last time about how to not get claustrophobic. I’m not sure when I’ll have that scheduled – fairly soon I think, as a post-surgery baseline for comparison to future testing.
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Please try again."}},"email_for_login_code":{"placeholder_text":"Your email address","initial":{"instruction_type":"normal","instruction_message":"Enter your email to log in."},"success":{"instruction_type":"success","instruction_message":"Enter your email to log in."},"blank":{"instruction_type":"error","instruction_message":"Enter your email to log in."},"empty":{"instruction_type":"error","instruction_message":"Enter your email to log in."}},"login_code":{"initial":{"instruction_type":"normal","instruction_message":"Check your email and enter the login code."},"success":{"instruction_type":"success","instruction_message":"Check your email and enter the login code."},"blank":{"instruction_type":"error","instruction_message":"Check your email and enter the login code."},"empty":{"instruction_type":"error","instruction_message":"Check your email and enter the login code."}},"stripe_all_in_one":{"initial":{"instruction_type":"normal","instruction_message":"Enter your credit card details here."},"empty":{"instruction_type":"error","instruction_message":"Enter your credit card details here."},"success":{"instruction_type":"normal","instruction_message":"Enter your credit card details here."},"invalid_number":{"instruction_type":"error","instruction_message":"The card number is not a valid credit card number."},"invalid_expiry_month":{"instruction_type":"error","instruction_message":"The card's expiration month is invalid."},"invalid_expiry_year":{"instruction_type":"error","instruction_message":"The card's expiration year is invalid."},"invalid_cvc":{"instruction_type":"error","instruction_message":"The card's security code is invalid."},"incorrect_number":{"instruction_type":"error","instruction_message":"The card number is incorrect."},"incomplete_number":{"instruction_type":"error","instruction_message":"The card number is incomplete."},"incomplete_cvc":{"instruction_type":"error","instruction_message":"The card's security code is incomplete."},"incomplete_expiry":{"instruction_type":"error","instruction_message":"The card's expiration date is incomplete."},"incomplete_zip":{"instruction_type":"error","instruction_message":"The card's zip code is incomplete."},"expired_card":{"instruction_type":"error","instruction_message":"The card has expired."},"incorrect_cvc":{"instruction_type":"error","instruction_message":"The card's security code is incorrect."},"incorrect_zip":{"instruction_type":"error","instruction_message":"The card's zip code failed validation."},"invalid_expiry_year_past":{"instruction_type":"error","instruction_message":"The card's expiration year is in the past"},"card_declined":{"instruction_type":"error","instruction_message":"The card was declined."},"missing":{"instruction_type":"error","instruction_message":"There is no card on a customer that is being charged."},"processing_error":{"instruction_type":"error","instruction_message":"An error occurred while processing the card."},"invalid_request_error":{"instruction_type":"error","instruction_message":"Unable to process this payment, please try again or use alternative method."},"invalid_sofort_country":{"instruction_type":"error","instruction_message":"The billing country is not accepted by SOFORT. Please try another country."}}}},"fetched_oembed_html":false}
